Search found 13 matches

by Squiggle
Tue Jul 04, 2017 8:35 pm
Forum: Coping with Colitis
Topic: First major flare for around 20 years
Replies: 9
Views: 4983

Re: First major flare for around 20 years

Oh dear - that doesn't sound right. I thought that the whole point of IBD Nurses was to be available to provide advice, to write prescriptions for people experiencing flares and to be alert enough to arrange for anyone with really bad symptoms to be admitted to hospital (well that's what they do at ...
by Squiggle
Sun Jul 02, 2017 7:52 pm
Forum: Coping with Colitis
Topic: First major flare for around 20 years
Replies: 9
Views: 4983

Re: First major flare for around 20 years

Glad to hear that you are home, but very sorry to hear that you are still feeling so poorly.

If it's possible try and take things easy - get plenty of rest and only eat small amounts.

Hope that your consultant is able to help and that you are feeling a bit better soon.

Squiggle x
by Squiggle
Fri Jun 30, 2017 10:41 am
Forum: Coping with Colitis
Topic: First major flare for around 20 years
Replies: 9
Views: 4983

Re: First major flare for around 20 years

Sorry to hear that you are feeling so poorly. Hopefully the oral steroids will have managed to start tackling the inflammation. If you are admitted to hospital it's not the end of the world and the iv steroids are very good at stopping the flare. I've only been admitted once for iv steroids (managed...
by Squiggle
Fri Nov 04, 2016 4:22 pm
Forum: Coping with Colitis
Topic: New
Replies: 1
Views: 2292

Re: New

Hi Kate Sorry to hear that you are feeling so poorly. The hospital appointments sound a bit patchy to be honest. Mesalazine is usually prescribed as a maintenance dose, so if it controls your symptoms you probably should be taking it continuously. My advice would be to ring the IBD Nurse at your hos...
by Squiggle
Sun Sep 18, 2016 8:01 pm
Forum: Medications
Topic: Choice of biologics
Replies: 2
Views: 3402

Re: Choice of biologics

Hi Dolphin

Many thanks - that will be very helpful.

Squiggle x
by Squiggle
Mon Sep 12, 2016 11:22 am
Forum: Medications
Topic: Choice of biologics
Replies: 2
Views: 3402

Choice of biologics

About two weeks since finishing my course of steroids and the flare up returned with a vengeance. I'm back on Entocort CR - thankfully, rather than Prednisolone - and 2 predsol enemas each day and things are improving slowly although I generally feel pretty terrible in the evenings. I have now heard...
by Squiggle
Mon Aug 29, 2016 10:00 pm
Forum: Medications
Topic: Double Infliximab
Replies: 10
Views: 7682

Re: Double Infliximab

Hi Dolphin Sorry to hear that you are feeling so poorly. I notice that you are taking both Asacol tablets and enemas and that you are still feeling terrible. Has the hospital considered that you might actually be having an adverse reaction to the Asacol? It's not unknown, although in my experience h...
by Squiggle
Thu Aug 04, 2016 5:00 pm
Forum: Medications
Topic: Newly diagnosed
Replies: 4
Views: 4077

Re: Newly diagnosed

Sorry to hear that you are still feeling poorly. From the description of your continuing symptoms it would be a good idea to call your IBD Nurse for advice. Don't worry that you are wasting their time. Explain your symptoms - particularly if you are being woken in the night by the pain or the urge t...
by Squiggle
Thu Aug 04, 2016 4:45 pm
Forum: Coping with Colitis
Topic: Predsol and airlines
Replies: 4
Views: 5755

Re: Predsol and airlines

My GPs surgery refused to provide a letter so I packed one box of predsol in my suitcase and took a copy of the prescription with me - no one at the airport asked me anything about it. The combination of the Entocort CR tablets and predsol meant that I actually felt well enough to enjoy the holiday ...
by Squiggle
Tue Jun 14, 2016 10:36 pm
Forum: Medications
Topic: Advice re Enemas please
Replies: 2
Views: 4693

Re: Advice re Enemas please

Hi There are 2 types of prednisolone enema - foam and solution. I find that the solution is more effective when a flare is bad (use twice a day) and that the predfoam is only effective when things are improving. I'm recovering from a flare at the moment - I managed to persuade my consultant to presc...