Search found 50 matches

by clarabella
Fri Mar 09, 2018 11:49 pm
Forum: Medications
Topic: Joint pain, but finished prednisone almost a year ago.
Replies: 0
Views: 4604

Joint pain, but finished prednisone almost a year ago.

Hi, My husband had his bowel removed almost 2 years ago for UC after being on steroids for 4 years. He is now off the steroids, having finished his taper about 8 or so months ago. The last few days he has had severe joint pain in both hands. It's mainly at night and it is an aching/cramping feeling....
by clarabella
Sat Nov 11, 2017 11:25 pm
Forum: Medications
Topic: Tapering off prednisolone after using for 4 years
Replies: 35
Views: 37619

Re: Tapering off <a href=

Hi all, Well hubby is now feeling fabbo after being off the steroids for a few months now. No withdrawal symptoms or anything. He is not drinking much, running and going to he gym and eating healthy. He has not been this healthy in years and is loving it! Having his bowel removed was the best thing ...
by clarabella
Sun Sep 03, 2017 11:39 pm
Forum: Medications
Topic: Tapering off prednisolone after using for 4 years
Replies: 35
Views: 37619

Re: Tapering off <a href=

Hi all, Just a quick update. Hubby is finally off the steroids!!! He has been of them now for 3 weeks. I can't believe it, I was scared he would never get off those damn drugs! He does have some withdrawal symptoms, but nothing too terrible. It's taken just over a year for him to taper off the stero...
by clarabella
Sun Apr 30, 2017 9:59 pm
Forum: Medications
Topic: Tapering off prednisolone after using for 4 years
Replies: 35
Views: 37619

Re: Tapering off <a href=

Well hubby is still tapering off the steroids. He is now on 1mg! He is having some withdrawal symptoms (achy joints, tiredness etc). The symptoms seem to last longer with each drop (about 3 weeks now). He has had his bloods checked and is all in good health. It is frustrating sometimes as he just wa...
by clarabella
Sun Apr 30, 2017 9:44 pm
Forum: Surgery
Topic: Significant decrease in stoma output, but feel fine
Replies: 4
Views: 7253

Re: Significant decrease in stoma output, but feel fine

Well hubby is back to normal now. His output was low for two days and he felt bloated. It then just became normal again. It was very strange. Glad it is sorted.

Thank you all for your replies - it helps so much!
by clarabella
Sun Apr 23, 2017 3:42 pm
Forum: Surgery
Topic: Significant decrease in stoma output, but feel fine
Replies: 4
Views: 7253

Re: Significant decrease in stoma output, but feel fine

Thanks for your reply Phil - it really helps! I'm going to ring his nurse on Monday. He tells me the stoma is working, just very slowly. He has no pain etc. I don't know if it is because he hasn't eaten much in the last few days and has been doing DIY from dawn till dusk (we are currently renovating...
by clarabella
Sat Apr 22, 2017 7:19 pm
Forum: Surgery
Topic: Significant decrease in stoma output, but feel fine
Replies: 4
Views: 7253

Significant decrease in stoma output, but feel fine

Hi, Has anyone experienced changes in their stoma output with no other problems? My hubby's stoma usually works like clockwork and he has to empty it about 5-6 times a day. For the last two days, his output has decreased significantly (he has only emptied it twice per day). I was worried it was a bl...
by clarabella
Fri Apr 21, 2017 7:23 pm
Forum: Surgery
Topic: How long to wait to visit ER when you have no stoma output?
Replies: 3
Views: 7676

How long to wait to visit ER when you have no stoma output?

Hi guys, I just have a quick question, how long do you wait before visiting the ER when you have no output from your stoma? My hubby has been doing fabulously until today. He has had no output from his stoma all day. However, he feels fine. No pain, nausea or vomiting. Before lunch he had pain and n...
by clarabella
Fri Jan 13, 2017 4:19 pm
Forum: Surgery
Topic: Frequent blockages post total colectomy help!
Replies: 43
Views: 47756

Re: Frequent blockages post total colectomy help!

Well I thought I would post a quick update on my hubby. He is doing wonderfully, eating whatever he wants (fruit, veg etc.), going to the gym and lifting weights and feeling healthy for the first time in years. My husband hasn't had any major blockages. He has been keeping his water intake up and dr...
by clarabella
Fri Jan 13, 2017 4:06 pm
Forum: Surgery
Topic: Pain in rectal stump following a total colectomy
Replies: 6
Views: 10609

Re: Pain in rectal stump following a total colectomy

Sorry for my late reply. Thank you for your post and advice. I'm glad to hear you solved the problem and your surgery was a success. My husband spoke with his doctor today about getting the stump removed and was told he would be in hospital for 4 days and it would take 4 weeks to recover. He's not s...