Recently diagnosed colitis

Nearly three out of four ulcerative colitis (UC) sufferers (73 percent) responding to a new nationwide survey say not feeling well has become a normal part of life. Furthermore, they describe UC as disruptive when it comes to their relationship with a spouse (64 percent), their sexual relations (75 percent) and their emotional state (82 percent).
How do you cope with colitis ? Are you struggling with the emotional effects ? Even if a problem shared isn't a problem halved it may help to discuss it with people in the same situation.
kneedown
Active member
Posts: 7
Joined: Sun Nov 27, 2016 12:25 pm
What is your status: Colitis Sufferer
Date first diagnosed with IBD: 19 Nov 2016

Re: Recently diagnosed colitis

Post by kneedown » Wed Dec 07, 2016 9:45 pm

Hello all and thanks Phil for your comments, much appreciated, well I attended my appointment and it went far better than I could have hoped for, I asked lots of questions and got mostly positive answers, firstly he increased my Asacol granuals from 1g per day to 3g per day and left the dose of suppositories at 1g per day, he gave me some laxatives to hopefully deal with the constipation then to my amazement he told me to continue eating what I had ate preveous to this flare including fibre products, he told me it was ok to have a social drink 'within reason', he stated that 1g of Asacol granuals was just a maintainance dose so not enough, I can only assume that he thinks I'm all but over this flare. I'm to continue the medication and wants to see me in 6 months time, he's sending me a management pack out including a contact IBD nurse should I need help or want any questions answered, he did point out all the possible outcomes from the best to the worst senarios.
I have to say my moral is very high at the moment and I'm hoping to continue to improve especially when I've got this constipation sorted out.
I'll keep in touch and continue to read your comments in the hope that I may be able to reassure someone newly diagnosed or indeed any of you good people as my journey progresses, best wishes to you all, regards, John. :D



rogalin47
Power poster
Posts: 1016
Joined: Mon Aug 09, 2010 4:28 pm
What is your status: Colitis Sufferer
Date first diagnosed with IBD: 01 Jul 1992
Location: Hereford

Re: Recently diagnosed colitis

Post by rogalin47 » Wed Dec 07, 2016 10:26 pm

That's fantastic news John, so pleased you feel so positive about everything......sounds like you've got a good consultant who actually took his time with you. The IBD nurse is usually your first contact at the first sign of a flare up so keep her number handy, I used to have mine pinned to the front of the fridge. Don't hesitate to ring her immediately if you have any concerns or feel you are flaring.

Hopefully your mind has been put at rest a little and your symptoms will get better and better as each day passes and you can now think about enjoying the festive season
:party: :party:


21 years of evil UC over on 6th April 2013, welcome to Norman the stoma whose given me my life back!!

rogalin47
Power poster
Posts: 1016
Joined: Mon Aug 09, 2010 4:28 pm
What is your status: Colitis Sufferer
Date first diagnosed with IBD: 01 Jul 1992
Location: Hereford

Re: Recently diagnosed colitis

Post by rogalin47 » Wed Dec 07, 2016 10:29 pm

Good to hear from you Phil, how are you keeping?

The dynamic duo hey? I rather like the sound of that!!

Do we get to wear capes and underpants over our trousers? :lol: :lol:


21 years of evil UC over on 6th April 2013, welcome to Norman the stoma whose given me my life back!!

philayl63
Power poster
Posts: 217
Joined: Wed Aug 25, 2010 6:07 pm
Date first diagnosed with IBD: 0- 2-2001

Re: Recently diagnosed colitis

Post by philayl63 » Thu Dec 08, 2016 1:10 pm

rogalin47 wrote:Good to hear from you Phil, how are you keeping?

The dynamic duo hey? I rather like the sound of that!!

Do we get to wear capes and underpants over our trousers? :lol: :lol:
NO!!!! Not the underpants over the trousers again! Didn't the police warn you bout that? I'm doing Ok thanks rogalin, have been diagnosed with another hernia just below the sternum, specialist said he will see to it early next year, I still think he should have put a zip in instead of stitches. Hope you are keeping well and not nagging hubby too much. Phil



kneedown
Active member
Posts: 7
Joined: Sun Nov 27, 2016 12:25 pm
What is your status: Colitis Sufferer
Date first diagnosed with IBD: 19 Nov 2016

Re: Recently diagnosed colitis

Post by kneedown » Thu Dec 08, 2016 1:40 pm

Hello all, I forgot to mention something that may help others on the forum, during my consultation I asked the specialist about certain medications I had been taking long term which I had stopped taking since my diagnosis confirmation, he said it was ok to continue to take 'Lanzoprazole' for acid reflux, but importantly he said it was ok to continue again with the pain killer I have been taking for many years to help with back problems and sciatica, its the only pain killer I ever found that dosn't make me constipated and its very affective, its called 'Tramacet', its soluable and quite gently on the stomach, I hope this may be of help to someone. He did however tell me to not use 'Ibuleve Ointment' anymore as it contains ibuprofen which is he said a definate no no, kind regards, John.



Karencraig
Power poster
Posts: 1596
Joined: Fri Apr 15, 2011 9:51 am
What is your status: Colitis Sufferer
Date first diagnosed with IBD: 08 Jan 2010
Location: Rochdale Lancs

Re: Recently diagnosed colitis

Post by Karencraig » Thu Dec 08, 2016 10:40 pm

Helpful info John. My gastro only prescribes paracetamol for general pain relief, always worth using instead of the ibuleve.

Phil sorry to hear about your latest hernia! What are you like!


EX UC sufferer,surgery on 1 March 2012!!! Marvin (Stoma) became my life enhancer.

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