Just diagnosed

Nearly three out of four ulcerative colitis (UC) sufferers (73 percent) responding to a new nationwide survey say not feeling well has become a normal part of life. Furthermore, they describe UC as disruptive when it comes to their relationship with a spouse (64 percent), their sexual relations (75 percent) and their emotional state (82 percent).
How do you cope with colitis ? Are you struggling with the emotional effects ? Even if a problem shared isn't a problem halved it may help to discuss it with people in the same situation.
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Scorpion
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Posts: 3
Joined: Wed Feb 08, 2017 11:14 am

Just diagnosed

Post by Scorpion »

Hi all,
On Xmas day I had wat I thought was the flu"chills" the following day I suddenly got severe stomach cramps followed by severe bloody diarrhea for about a week. I also had a low temperature. I provided a stool sample to eliminate infection. My calprotectin was 6000 and should be between 0-50. Dr said I probably have acute colitis and referred me to see a colon specialist yesterday. My gp said the specialist can decide whether I need a Colonoscopy and she didn't seem that concerned. The specislist asked as to why it took so long for Dr to refer me which made me worry. She has referred me for a endoscopy and Colonoscopy for 2 weeks time. I definitely have inflammation but I'm not sure whether its crohns or colitis. I'm sti bleeding slightly and after examination she said its coming from further up. Should I be worried?. Im panicking aas I've read wat people go through with colitis and crohns. I haven't had any symptoms since December and at the moment feel 100% fine. Can I live a normal life with this? Can I drink alcohol as I usually go out weekends and I want to live a normal life as possible. I'm also worried about colon cancer. If it was cancer would it be persistent? Sorry for all the questions. I'm so worried about future operation's too. Can it be life threatening? Im 42 nearly 43.



clarebear1
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Posts: 4
Joined: Sun Feb 12, 2017 9:22 pm

Re: Just diagnosed

Post by clarebear1 »

Hi, I know it is a scary time for you, but a lot of people have near normal lives with these diseases, that are kept well controlled. When you are well, there is no reason why you can't drink alcohol, you will soon know if it affects you. But wait and see what your consultant says and what diagnosis you have before you worry too much. best of luck x



Karencraig
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Posts: 1596
Joined: Fri Apr 15, 2011 9:51 am
Location: Rochdale Lancs

Re: Just diagnosed

Post by Karencraig »

Your consultant was probably annoyed you'd had to wait as you've been suffering from your flare up longer than you could have been.

Sounds like you've got a good consultant. Diet very much depends on the individual. Low fibre is recommended when flaring, as fibre irritates an inflammed bowel.
You've found a great place for advice and support. Hopefully you wont need us much.


EX UC sufferer,surgery on 1 March 2012!!! Marvin (Stoma) became my life enhancer.

Pjwalla17
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Posts: 3
Joined: Wed Mar 29, 2017 11:20 pm

Re: Just diagnosed

Post by Pjwalla17 »

Hello all I apologise in advance for the spelling my name is peter I have been getting pain around my back an sides for some time now three months plus I've been putting it down to my work journey and on Tuesday last week it became much more painful and moved to the front I went home had a bath after getting out I found it difficult to dry myself and began to shake
I beard thru it an the following day had to go to hospital thy kept me in for 7 days I had the camera dut thy could only go so far due to infelmation and I have been diagnosed with uc am very upset and don't know what to expect any guidance pls am 38 an a farther of 5 thanks peter



Karencraig
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Posts: 1596
Joined: Fri Apr 15, 2011 9:51 am
Location: Rochdale Lancs

Re: Just diagnosed

Post by Karencraig »

Peter, firstly, have you been referred to a gastro consultant? If not get your GP to refer you. If you have find out when your appointment is. The hospital may have an IBD nurse who can offer telephone advice.

Ask questions here,

Have a look on Crohns and Colitis UK site LOADS of great information on here. https://www.crohnsandcolitis.org.uk/

It is a shock getting a diagnosis, but at least you have one, and in most cases its a treatable and manageable condition.


EX UC sufferer,surgery on 1 March 2012!!! Marvin (Stoma) became my life enhancer.

Pjwalla17
Active member
Posts: 3
Joined: Wed Mar 29, 2017 11:20 pm

Re: Just diagnosed

Post by Pjwalla17 »

Hi thanks for posting thy have referred me to a gastroenterologist an I have a IBD nurse at my local hospital I have an appointment for the 2nd of may .i just don't no what I can do .is it gonna get worse will I need an operation will I still be able to play with me kids and so Many more things goin through me head



Karencraig
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Posts: 1596
Joined: Fri Apr 15, 2011 9:51 am
Location: Rochdale Lancs

Re: Just diagnosed

Post by Karencraig »

You'll live a normal life, as long as you get the right treatment for you In some cases, as in mine, it does require surgery. But not all. In my case, I didnt want surgery, was terrified of it. 5 years on, never been as healthy as I have been. There will be times of flaring but hopefully lots of remission If it comes to "the Worst" surgery, it can often be the best!

You are at the beginning of your journey, its horrible and scarey, but you have a team behind you. It is a chronic illness, but you have the support and guidance of a team to help you manage. And you've found a great support network.


EX UC sufferer,surgery on 1 March 2012!!! Marvin (Stoma) became my life enhancer.

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